Requesting Data from CCO

Requesting Data from CCO

CCO collects and manages one of the most comprehensive healthcare data sets in Canada. The data is used to support research and informed decision making in Ontario's healthcare system. Data and analytics are integral to meeting the growing demand for greater health system accountability, better health outcomes and improved patient experience.

Who can request data from CCO?

Data requests are accepted from:

Researchers
Health system providers
Government organizations

How to request data

Please review the options in the table below for the types of data requests fulfilled by CCO. Please email datarequest@cancercare.on.ca with any questions you may have.

Cost of data

A cost recovery model is in place for research requests, and will soon be implemented for health system planning data requests. The charge is based on the type and complexity of your request. The fee considers the number of hours required to complete your request, including review and consultation with research and data analysts, review by a governance body, extracting data, linking data sets, performing quality assurance checks, preparation of data for release, and finally transferring the data. An estimate of the total cost will be provided in advance of request fulfillment.

In addition, if you need a cost estimate prior to submitting a data request (e.g. to support a research grant application), please contact us at datarequest@cancercare.on.ca.

Types of Data Requests

iPort™	SEER*Stat Requests
CCO’s web-based analytic portal for cancer system planners, decision makers and clinicians Please email informatics@cancercare.on.ca to receive a copy of the Analytics & Informatics Access Request Form.	For incidence and mortality data, software for conducting analysis and developing statistics on the data Visit the CCO SEERStat Package page to learn more Submit the Confidentiality Agreement Form for CCO SEERStat Package—Release 10 to ccoseerstat@cancercare.on.ca
Research Data Requests	Health System Planning Data Requests
For research requiring record-level data, fill out the Research Data Request Application below. Please review all instructions provided. Research Data Request Application Form Research Data Request FAQ Research Data Request Sample Form	For Health System Planning Data Requests requiring summary statistics or de-identified data, fill out the Health System Planning Data Request Form below. Health System Planning Data Request Form Health System Planning Data Request FAQ

NOTE: In October 2014, CCO launched the new Ontario Cancer Registry (OCR), which applies the National Cancer Institute’s Surveillance, Epidemiology and End Results (NCI SEER) program for counting multiple primaries and assigning histology (for data from years 2010 and later). Historic cases (1964–2009) have been imported into the OCR to allow for continued use for analytic purposes. For direct comparison purposes, users are advised to convert data from 2010 and later using the World Health Organization’s (WHO) International Agency for Research on Cancer (IARC) rules. If you have questions about the cancer registry, send an email to: ocrquestions@cancercare.on.ca .

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Last modified: Tue, Jun 06, 2017